People affected with Ankylosing Spondylitis live all over the world. It may be a subdivision, or an apartment, and possibly even in the home a block away from you. As a person battling AS, I have found that I do not limit the place I call home to only the one that provides a roof over my head, but to the community in which I find the love and support I need to help in my daily fight with AS. The Ankylosing Spondylitis Community. The courageous people in this community consist of AS Warriors, their family and friends. People who do not judge, but want to sincerely be there for each other. They are an open ear, a caring heart, and people who truly want to know more about each others experiences with AS. With AS Awareness Month coming up in April, I know it’s our month to shine. We must do all we can to continue spreading awareness.
I have met amazing AS’ers who are also doing their part in helping to spread awareness. Each of us with a creative way to reach out to others. I consider them some of my closest friends. Although I have not met the majority of them in person, I feel like we have known each other for years. I know I could email or call any one of them on a “bad” day for a sympathetic ear, suggestions, or to compare stories, and know that judgment will not be had throughout the conversation. Am I thankful for having Ankylosing Spondylitis? YES! Without my diagnosis I would never have met a long list of some of the strongest people I’ll ever know. Thank you to AS for blessing me into a community of hope and comfort.
I have several sites that I visit frequently. An obsession of mine is The Feeding Edge. Jenna V. is amazing in her creativity. She uses art to help spread AS awareness. Her positive approach touches so many of us. I wake up each morning looking forward to what Art Apple A Day will come through my email, Facebook & Twitter feed. Her work is so remarkable I have requested my own “Jenna Apple” painting. Her work has inspired me to create a room in my home dedicated to apples. My husband wasn’t sure about an “apple” room at first until I explained my reasoning behind it. Ankylosing Spondylitis has made such an impact in my life, good and bad, that the meaning behind the room is crucial in my battle. It will be a reminder to never give up the hope that tomorrow there may be a cure. Jenna and I are always joking with each other that it’s kind of scary that we have so much in common. We both are always looking ahead for the next possibility to help spread AS awareness. Jenna and I physically live several states away, but we know we can come to our AS community and feel right at home together. My hope for all of you is that you also find the strength and comfort in our community. Move on in, the neighbors are great!
Below is a list of some of my favorite AS Communities. Check them out! Together We Can Help Set Things Straight!